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Friday, June 22, 2018

On-Line Support Groups

Friday June 22, 2018 time: 1508
Last night Sydney was way too excited that he spoke to  cousin Jennifer for a long time. He said his phone kept dying because he ran the battery down. He was going on and on and on with his excitement, I was trying to speak but ended up screaming into the phone to shut up, I should just have hung up to get his attention. Hind sight. I joined a closed on-line group through F.B. called Asperger Syndrome Awareness. It is composed from people all over the globe who either are persons with Asperger, care-givers, medical people, or families of ASD people. I have learned sooooo much and I ask questions. One of the first things I asked about was nail and hair trimming, one "Aspie" as they like to be called said that he hates his nails done, while a mother states that her son's wild hair, also dressing and bathing issues. Sydney follows in-suite with all the others and I am relieved that I can learn much from young and adult Aspies and their families/caregivers. Sleep, or lack there -of along with sensory perception disorders, OCD, are all part of this and it will arm me with information to take to therapy. Hoarding is an issue and one lady calls her son Hurricane Herman  because of hoarding in the home and a 10x10 shed that is full. I am not alone in looking for answers.

Another weak of P.T. and my left side is still weaker and hasn't gotten any stronger. Next weak will be jam packed with our two day trip to Jonesboro for mental illness meetings. I hope Sydney won't come unglued and behave himself as best he can. I'm tired and will go grab me a few hours of sleep before heading out tonight. Momma's gotta pay bills. And in 5 days it will be officially 3 months since filing for SSDI, still no word even after I went to the SS office the other day. Hurry-up and wait.